News and Links

One of the 29 lab tests that Lynette had exposed a hormonal imbalance. Her doctor suspected pituitary gland involvement. The pituitary gland is buried deep in your brain. A place that borrelia have been known to frequent. Dr. Jemsek sent Lynette for an MRI of her pituitary gland. It's not uncommon for people with neurological manifestations of Lyme disease to have this issue. The MRI was to confirm that the Lyme disease was the cause of the pituitary issue, rather than something else like menopause. Dr. Jemsek seems to have Lynette on the way to IV antibiotic treatment within the next couple of weeks. The pituitary involvement seems to be one of his motivations.

Does any of this sound a little scary? Lynette continues to surprise all of us. She's been out with the girls several times. Of course we had Anna's birthday party on Saturday at Tanglewood. I tried my best to be as unavailable as possible. Lynette was there the whole time crackin' the whip! We are so appreciative of her progress and we frequently mention how different it was just 2 or 3 months ago. We are so lucky to be where we are right now.

I've found a few interesting Lyme links recently.

Sunday afternoon I was listening to the People's Pharmacy on NPR. The show was just ending and they announced the name and the credentials of their last guest as they were signing off. This guy was a Fibromyalgia and Chronic Fatigue specialist. These two ailments are common misdiagnoses for Lyme patients. I went to his website to see if I could find out what his stance on Lyme was. I found this very interesting blog entry about his dissatisfaction with the horrible inaccuracies of current Lyme testing:

http://www.jacobteitelbaum.com/tools-support/Article_lyme_disease.html

Dr. Kelly Clark is an epidemiologist at the University of North Florida in Jacksonville. He is doing some heavy duty research on Lyme disease. He has developed testing methods that appear to be more sensitive than the standard testing today. His tactics really seems to make a lot of sense.

http://www.jacksonville.com/lifestyles/health_and_fitness/2009-05-19/story/unf_professor_works_to_unlock_lyme_diseases_mysteries